Save the Date!
Oct. 24th will be our fundraiser for SMA. We are changing the format this year. We will host a 5k run, 1 mile fun run, walk-n-roll with a carnival at the park, here at Willow Creek Park in Saginaw. We will have brisket sandwiches, bounce houses, dunking booth, silent auction, raffle prizes, softball tournament, and lots of kids carnival games to raise money for SMA: Savanna’s Rush to a Cure.
More details to follow…
Pictures of Savanna and Boston
Here are a few new pictures of Savanna and Boston. Enjoy!
Savanna and Boston
I think it’s time to lower the mattress on Boston’s bed. Just had to send this picture of him trying to climb out of his crib. Does he not understand he is only 4 months old????? Silly kid will be crawling within a few weeks. He is already up on all fours rocking and can get all around in the crib as it is.
This picture is from Savanna’s very first stage performance. She went to music camp last week and they had a program at the end of the week, an Old MacDonald type of program. She wanted to be one of the chicks because they got to wear yellow boas and her favorite color is yellow right now. She did great and was so proud of herself.
Boston and Savanna Update
I'm SMA free!
Hello everyone. It’s hard to believe our baby boy will be 1 month old on Tuesday. We finally got his test results back and I am thrilled to say that Boston does not have SMA! He is a carrier, but that’s not a big deal to us. I want to thank you all so much for your prayers for our family.
I have been waiting to do a Savanna update until I had news on Boston and never expected it to take so long to get his results back. We had his blood drawn the day after he was born, but with genetic testing and waiting on doctors, it took until today to get confirmation of what we already believed to be true.
I can say that it was a long 9 months and an emotional roller coaster of worrying about him. Even though my faith is strong and I truly believed that whether he had SMA or not, he was absolutely, 100% the child God intended him to be and the brother He intended Savanna to have. I would worry when he wasn’t moving, moved too little, etc. I would get teary eyed thinking about the “what ifs” and the daily challenges we would face with having two children in wheelchairs and how would our van be big enough to hold both of them. I think about Tim’s Aunt Karen and how she has done such a remarkable job raising 2 children with SMA and wonder how she has the energy to do it. Her children are both Type 2, so they are quite a bit stronger than Savanna and don’t have the breathing issues that Savanna faces. But they are such an incredibly strong family.
As for Savanna, she is doing wonderful. She had the chicken pox 2 weeks before Boston came and then got the flu 3 days after he came home from the hospital. So it has been stressful here at the Rush home. I had some complications after delivering him and had an emergency D & C, so I was a bit anemic the first few weeks we were home from the hospital. But I think we are all better now. Savanna absolutely loves her little brother and is a great big sister. She has not been jealous at all and it doesn’t seem to bother her one bit when he screams his head off! She is very tolerant! We were saying her bedtime prayers a few weeks ago and I reminded her to pray for Boston, that he did not have SMA. She looked at me and asked, “What is SMA?” I thought that was so funny because we have talked about it numerous times and about how her muscles are weak, etc. I asked her if it ever bothered her that she is in a wheelchair and she said No. She is such a blessing! I was dreading the chicken pox and how it would affect her since she can’t scratch herself. I thought we would be in for a miserable week, but she hardly complained at all. She got her oatmeal baths every night and being the sneaky one, she asked her nurse for her toothbrush during one of her baths. She then proceeded to use the toothbrush to scratch herself. She’s such a character that way!
As for Boston, or Tim’s Mini Me, he is doing great. He loves to eat. I am attaching a few pics of the kids. Sounds funny to say “kids”, although I always said I had 2 — a 6 year-old and a 40 year-old. Tim and I will be celebrating our 10 year anniversary this month — funny that we never imagined we would have a newborn at our 10 year anniversary. Life is full of surprises. Savanna was a flower girl this weekend in my nephew’s wedding. She did a great job and made us all proud, as I figured she wouldn’t go thru with it. I am attaching a pic of her doing her “flower girl duty” and one of her “feeding” the baby.
Savanna will be starting baseball again in a few weeks with The Miracle League and her cousin Sam will be on her team. Opening Day is Sat, April 5th if anyone is interested. On Opening Day they have bounce houses, face painting, and other fun stuff for the family. Not sure what time her game is yet, but email me if you are interested. They play at Randol Mill Park which is on Randol Mill Rd, just west of Fielder in Arlington.
I’m staying busy with school this semester and just applied for nursing school at TCC. I should find out next month if I got accepted, but it is so competitive that I’m not sure what to expect. They typically have 400 applicants each semester and only accept 100 students. They base acceptance strictly on GPA, number of pre-requisite courses you have completed and how well you score on the nursing entrance exam. I am exhausted and looking forward to this semester being over and taking the summer off and hope to have Boston on some sort of “schedule” soon. Tim is still trying to get full-time at Fed Ex and has just opened the concession stand at the softball field here in Saginaw and looking for a spot for our snowcone trailer. He is enjoying having a 2nd child that looks just like him and can’t wait to “show Boston his moves.” Just doesn’t seem fair that I go thru the pregnancy, nausea, heartburn, gestational diabetes, pre-eclampsia, D&C and they come out looking exactly like their father! I do all the work and he gets all the glory!!!! LOL
We appreciate all of your prayers and are just extremely thankful for the good news on Boston. We are just trying to enjoy every moment of him, knowing that this is the last baby for the Rushes. I’ll try to send another update soon. Blessings to all of you!
Love,
Mindy
Baby Boston has arrived!
We welcomed Boston Michael Rush into this world Monday, February 18th at 7:45 am weighing in at 8lbs 4 oz. 20 3/4 long. Mindy is now recovering and will be home with Boston on Wednesday. Here are a few pictures of Boston. Thanks for keeping us in your prayers and look forward to seeing you soon.
Tim
