About Me

Welcome!
Hi! My name is Savanna Rush. I am 8 years old. When I was 8 months old, I was diagnosed with Spinal Muscular Atrophy. This terrible form of Muscular Dystrophy is the leading genetic killer of children under two years of age. SMA destroys the motor neurons, which control voluntary muscles.

I cannot sit up or crawl; I have very little head control; and I am fed thru a feeding tube in my stomach because I have lost my swallowing function. I can, however, light up a room with my smile and melt your heart in a matter of minutes. Children with SMA are typically highly intelligent and very sociable. It affects our little bodies, but not our minds or spirits.

Please do not feel sorry for me for God has set it up this way. He’s placed me in an amazing home with two adoring parents to make sure I’m well taken care of. God does know what he is doing!

A Cure is Near
We are very excited that a cure and/or treatment are predicted to be in the very near future. Researchers have determined the gene that causes SMA and have even been able to cure it in a mouse. There are currently drug trials being performed across the country as valproic acid is thought to help in the treatment of SMA. We just need to keep raising money to fund research.

About My Website
My website is dedicated to educating people on SMA and raising money to find a cure for SMA.

So please take time to check out my website. Make sure you bookmark my website because we will be keeping it up-to-date. Please feel free to contact me if you have any questions or comments.

About SMA

Spinal muscular atrophy (SMA), the number one genetic killer of children under the age of two, is an often fatal disease that destroys the nerves controlling voluntary muscle movement, which affects crawling, walking, head and neck control, and even swallowing.

SMA Facts

One in every 6,000 babies is born with SMA. SMA can strike anyone of any age, race or gender. One in every 40 people carries the gene that causes SMA. The child of two carriers has a one in four chance of developing SMA. 7.5 million Americans are carriers.

Fundraising Facts

FSMA's fundraising efforts drive all of the progress that we are able to make towards a treatment and cure for SMA. We are focused solely on developing a treatment and cure for SMA. We do not invest any of your funds towards other diseases.