Some Prayer Requests
Hello everyone. I will keep this one short, because I am so tired, but I needed to send out an email to ask for prayer requests. First of all, Savanna is doing great. We are leaving this Saturday to drive to Florida for a family vacation/high school reunion and for Savanna’s first trip to Disneyworld!!! We are very excited here in the Rush household as this was a last minute trip. So I would like to ask you all to cover us in prayer for safe travel, for us all to stay healthy and have a wonderful trip. We will be driving to Daytona Beach to visit family and for Tim’s high school reunion and will go to Orlando for a few days so Savanna can go to Disneyworld and meet the other Princesses. We are looking forward to having the time of our life. We will be gone 10 days since we are driving. We should get back home the 24th and then Savanna will have her 2nd scoliosis surgery on the 27th, which brings about the 2nd prayer request. I have to say that my little trooper has taken the news of having another surgery like it is just another day. I decided to tell her about 5 weeks ago that her surgery was coming up. I have to admit I was very nervous about telling her because I thought she might have enough sense to be scared of the hospital and having surgery now that she is the big almost 5 year-old. She was driving thru the kitchen when I told her that we needed to talk about something. She is driving along and as I told her that she would have to go into the hospital again soon to have another scoliosis surgery, she stopped dead in her tracks. Yikes!!! “Awwww man, I have to have another surgery?!” was her only reply. Whew. Got thru that one. I reminded her of it a few weeks ago and she just said, “Okay.”
So my 2nd prayer request is that she will do wonderful thru surgery again. I am praying for Dr. Gray, her orthopedic surgeon to perform another great surgery and for Savanna to once again amaze everyone with her speedy recovery and that she will touch each person that she comes into contact with at the hospital, as she always does. I always pray that she will make a difference in the lives of those that take care of her and I always look forward to hearing the various stories from her nurses and doctors about how much she amazes them or blesses their lives. This surgery should just involve lengthening her growing rods and also expanding her stoma (the hole in her throat where her tracheostomy tube is). The last time I spoke with her doctor, he thought he would just make a small incision at the top of her spine and extend her rods thru that incision, so I am hoping that is still the plan.
Third, along with the trip, we are praying that her new power wheelchair comes in this week and that everything will work and fit great with it so she can sit more comfortably and drive better for our trip to Disneyworld. We are so blessed to have such a great wheelchair guy that goes above and beyond for Savanna to take care of her. She is very excited about her new yellow wheelchair and we know it will give her even more freedom and independence. I think that is a good thing? Not sure since 99% of the time that she gets in trouble it has something to do with her driving her chair and not following directions. She just giggles as she continues to do what we have just told her not to until I reach over and turn her wheelchair off! The new chair will have a remote power switch so I can turn her off without having to catch up to her first! Sweet!! (yes, we really do turn her chair off and don’t even feel sorry for her).
Last, Tim’s route that he is on is officially up for bid as a full-time route. He has put his name on the list, but he feels he does not have a very good chance of getting it so I am asking for everyone to pray that he would be able to keep this route and go full-time.
Savanna’s fundraiser is right around the corner and as usual, I am way behind in getting things together. If you have anything you would like to donate for the auction or know of someone that might have something, please get in touch with me. Any donation is tax deductible and I am happy to send out receipts. We are also starting to sell tickets and sponsor tables. I am attaching a copy of the letter and the info sheet so you can print them off if you are interested in coming. We always have a great time and raise money and awareness for SMA at the same time. I was heartbroken to read of another little girl that lost her fight to SMA last month. She was 9 years old and has a twin sister that also has SMA. As I read her memorial, it was as if I was reading about my own precious Savanna. Cassidy also thought she was a princess, had her own angels and was an extremely happy and loving child that loved to give hugs. The thing that really broke my heart was thinking of her twin sister who has lost her best friend. When her parents told her that she had passed on, she told them she already knew because an angel had told her. So I had to go and just hug my little girl after I read that and thank God for another wonderful day with her. As she saw the tears in my eyes, she said, “Oh Mama, you don’t feel good?” She knows that Savanna hugs heal just about everything. When I cut my foot last month and had to get stitches in it, she would ask to look at it every day and then would say, “I want to pray for Mama’s foot.” I think she wanted to look at it every day to see if it had healed yet, since my little prayer warrior prayed for my foot every day, sometimes a few times a day. Sweet, sweet girl!!!
I will look forward to sharing the photos of Disneyworld with you. We are scheduled to have dinner in Cinderella’s Castle, so I know that will be a great time. Savanna has said, “I wonder what Cinderella looks like.” I’m sure she will exceed her expectations! Thank you all for your prayers!
Love,
Mindy
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