Tim Got a Job!
Hello to everyone:
First of all, Tim got a job!! He will start with FedEx on Thursday. As most of you know, when you first hire on with FedEx it is part-time. We don’t know how long it will take for him to get full-time, but he will be eligible for benefits after 90 days. He has had to turn down job offers because some companies did not have benefits. We know the benefits with FedEx are outstanding as well as being a great company to work for.
Also, Savanna saw her pulmonologist last week. She said her chest x-ray showed the right lung does look better. Savanna continues to be on her vent most of the day. The most we have been able to get her off is 5 hours, but her doctor is not concerned about that. She feels that is entirely normally with the seriousness of what she went thru and the lung still healing. She did give us the okay to start using the Cough Assist machine again, so I feel that will greatly improve her right lung. I was so glad to finally get some good news for her, since everything lately seems to be so bad. I think if one more person tells me how bad her scoliosis looks I may have to shoot them. I see it; I really don’t need to be reminded of it. I can’t think of much that is more frustrating than watching your own child cripple before your very eyes and not be able to do one thing about it and then be told on a weekly basis how bad it is looking.
But, her spirits are great. She continues to be happy and said her 1st 2 word phrase yesterday: okay mama. Also, her speech therapist was thrilled to hear her use the “k” sound last week, because you have to use your tongue to make a “k” sound. Up until now, Savanna has not used any words that require her using her tongue. We are still waiting for the components to her power chair, so she is still not able to use that.
For those of you with children, you will be happy to know that Savanna has gotten herself in “time-out” twice in the last week. It’s somehow nice to see her acting like a normal 2 1/2 year-old! We had our 1st meeting with the school district last week and Savanna will go back for diagnostic testing in August. She will start school in September and will most likely go every day for 3 hours a day. I can’t believe she will be in school at 3 years old! She will receive all of her therapies at school while she is there. I’m sure she will love it and the teachers seem great. There are only 3 children in that class right now and 2 are boys, so they are thrilled to have another little girl. I’ve told them how much Savanna loves to learn and loves to have books read to her. She is learning her ABC’s, can count to ten and knows most of her colors. I expect her to be doing her mathematical tables by the time she starts school. (kidding:))
Savanna will see her neurologist next month and sees her pulmonologist again in 5 weeks. I keep hoping we’ll get the stuff for her power chair any day now so I can write you all and tell you how much she loves her chair. Also, we are planning her fundraiser for September so everyone mark their calendars. It will be a lot of fun!
Please continue to pray for healing for our Sunshine. She still has a way to go before her right lung is back to “normal”. I’ll keep you updated on her progress and also on Tim’s new job. Let the countdown to no more COBRA payments begin!!!
Love,
Mindy
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