Disappointing News
I have disappointing news to share. I was informed on Friday that our insurance company will not pay for a power wheelchair for Savanna. Their reasoning is that “a 2 year-old does not need a power wheelchair”. They will allow benefits for a manual wheelchair. I have asked them to tell me at what age do they think my child needs a power wheelchair, since she cannot operate a manual wheelchair. I also informed them they were discriminating against our child by telling her she is not allowed to have her own mobility and we would be appealing this claim.
So, I am here asking for your help. Anyone who might have any information that could help would be appreciated. I have contacted Texas Scottish Rite Hospital, Families of SMA, Cook Children’s Home Health and Texas DME. FSMA is sending me an article titled, “Use of Power Mobility for a Young Child with Spinal Muscular Atrophy” that I will be attaching to the appeal. I have also written a lengthy letter to Tim’s human resources person at Entertainment Publications, since this is only one of the many problems we have faced with our insurance company. We are fortunate that MDA helps by allowing us $2000 every three years towards the purchase of equipment, however at this point, that would not make a dent in the $21,000 of the cost of the wheelchair. I am still hopeful that we will somehow get this chair paid for.
In addition to the daily struggles of supporting Savanna, I have the daily battles with our insurance company. I have to fight with them every week just to get things paid for that should not even be an issue, such as the ambulance ride we took last January. Please pray that we will get this issue resolved and get Savanna her own power chair — soon. We are in desperate need of some type of wheelchair that will support her enough that she can sit up. I’ll keep you updated as we hear anything.
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